Cunningham-Ramos AML & Stroke after TBI Journey

About 3 weeks ago the hospice nurses came to let me know that Kim is likely to be discharged from Hospice. They ‘love’ him as their patient, they said, because he is really low maintenance and his witty jokes have them roaring most of the time when they visit him. Also, the main benefits we get from hospice do not use their time as much.

It turns out that Medicare, which pays this private hospice organization a hefty monthly sum, requires that Kim’s health slowly go down. He has gotten worse overtime, but he’s still eating well, sleeping well, and is fairly cognitively sharp specially in the mornings. Also, he has now been in Hospice for 9 months and there’s no sign of the cancer retuning yet!

Though I do not want invasive medical intervention for him, even if he is not in hospice, I will welcome the change if it happens and start him on more intensive therapy (I do that and have trained the caregivers to have him exercise as well.)

I am holding out okay and somewhat trying to go on with life’s plans. Life is a great gift I treasure every day.